HR 470

                                                 PRINTER'S NO.   3151
             THE GENERAL ASSEMBLY OF PENNSYLVANIA
      HOUSE RESOLUTION
         No. 470
                                           Session of
                                             2026
INTRODUCED BY KRUEGER, HILL-EVANS, VENKAT, McNEILL, HOHENSTEIN,
   FREEMAN, RIVERA, SANCHEZ, NEILSON AND PASHINSKI,
   APRIL 7, 2026
REFERRED TO COMMITTEE ON HEALTH, APRIL 8, 2026
                            A RESOLUTION
1 Designating May 15, 2026, as "Prader Willi Syndrome Awareness
2    Day" in Pennsylvania.
3    WHEREAS, Prader Willi Syndrome (PWS) is a rare and complex
4 genetic disorder that affects multiple systems of the body and
5 requires lifelong medical care, specialized support and strong
6 community understanding; and
7    WHEREAS, This syndrome impacts more than 30 million citizens
8 of the United States; and
9    WHEREAS, One of the hallmark symptoms of the syndrome is
10 hyperphagia, which means that individuals with PWS never feel
11 full after eating, which often leads to obesity and
12 complications from obesity; and
13    WHEREAS, Other common symptoms include poor muscle tone,
14 distinct facial features, poor sucking reflex, behavioral
15 problems and cognitive impairment; and
16    WHEREAS, Raising awareness is essential to improving early
17 diagnosis, access to appropriate care and the overall quality of
1 life for individuals and families impacted by PWS; and
2WHEREAS, Regularly attending well-baby doctor's appointments
3 may help identify the syndrome earlier and lead to early
4 intervention to help the family navigate the complexity of PWS;
5 and
6WHEREAS, Individuals can be carriers of PWS, meaning that the
7 individual may not show symptoms while the chromosomal
8 abnormality can be passed to the individual's children without
9 knowing of the risk; and
10WHEREAS, May is recognized as Prader Willi Syndrome Awareness
11 Month each year to raise awareness and demonstrate support for
12 those in our communities who are suffering from the syndrome;
13 and
14WHEREAS, This year is especially meaningful, as we celebrate
15 the formation of the Prader-Willi Alliance of Pennsylvania, a
16 newly established nonprofit organization dedicated to supporting
17 individuals with PWS and their families through education,
18 advocacy and connection across this Commonwealth; and
19WHEREAS, The organization is committed to working alongside
20 families, health care providers, educators and policymakers to
21 ensure equitable access to services and informed care; therefore
22 be it
23RESOLVED, That the House of Representatives designate May 15,
24 2026, as "Prader Willi Syndrome Awareness Day" in Pennsylvania.
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